{"id":3469,"date":"2026-04-27T13:11:38","date_gmt":"2026-04-27T19:11:38","guid":{"rendered":"https:\/\/somos-hermanos.mx\/?p=3469"},"modified":"2026-04-27T13:12:16","modified_gmt":"2026-04-27T19:12:16","slug":"bailar-contra-el-olvido-la-lucha-por-hacer-visible-al-huntington","status":"publish","type":"post","link":"https:\/\/somos-hermanos.mx\/index.php\/2026\/04\/27\/bailar-contra-el-olvido-la-lucha-por-hacer-visible-al-huntington\/","title":{"rendered":"Bailar contra el olvido: La lucha por hacer visible al Huntington"},"content":{"rendered":"<h4><span data-contrast=\"none\">La Asociaci\u00f3n Mexicana de la Enfermedad de Huntington (AMEH) IAP trabaja desde 1992 para brindar atenci\u00f3n integral a pacientes y familias que enfrentan esta enfermedad neurodegenerativa.\u202f<\/span><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/h4>\n<p><span data-contrast=\"none\">Eran las 11 de la ma\u00f1ana y el sol en su pleno esplendor hac\u00eda de las suyas, al mismo tiempo\u00a0<\/span><b><span data-contrast=\"none\">el contrabajo, la guitarra el\u00e9ctrica, el tambor y el acorde\u00f3n se hac\u00edan presentes.<\/span><\/b><span data-contrast=\"none\">\u00a0En medio de todo ello se escuchaba alguien que dec\u00eda, \u201cque comienza la m\u00fasica\u201d esa voz dulce, tierna y llena de energ\u00eda era\u00a0Donaji\u00a0Toledo Betanzos, directora general de la Asociaci\u00f3n Mexicana de la Enfermedad de Huntington quien daba la bienvenida a la kermese que realiza la organizaci\u00f3n para que familiares, amigos, pacientes, patronato y equipo operativo convivan y con ello hacerse presentes y hacer visible la Huntington.<\/span><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">De acuerdo con Toledo Betanzos la enfermedad de Huntington\u00a0<\/span><span data-contrast=\"auto\">va alterando la capacidad cognitiva, se presentan alteraciones psiqui\u00e1tricas como:\u00a0<\/span><b><span data-contrast=\"auto\">depresi\u00f3n, delirio, ansiedad, paranoia, y el s\u00edntoma m\u00e1s visible son los movimientos involuntarios,<\/span><\/b><span data-contrast=\"auto\">\u00a0se puede empezar con tics en cara y manos y al ser progresiva y\u00a0discapacitante.\u00a0<\/span><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"none\">Se\u00f1al\u00f3 que l<\/span><span data-contrast=\"auto\">a Asociaci\u00f3n Mexicana de la Enfermedad de Huntington IAP es la \u00fanica organizaci\u00f3n en M\u00e9xico que brinda atenci\u00f3n integral a las personas con este padecimiento y a sus familiares.<\/span><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/p>\n<p><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">Donaji\u00a0Toledo informo que\u00a0<\/span><b><span data-contrast=\"auto\">la asociaci\u00f3n los apoya con:\u00a0<\/span><\/b><span data-contrast=\"auto\">Atenci\u00f3n terap\u00e9utica no farmacol\u00f3gica, es decir con terapia ocupacional, del lenguaje, f\u00edsica, as\u00ed como apoyo a familiares con platicas informativas, asesor\u00edas individuales, y de esta manera puedan afrontar la enfermedad de su familiar, concluy\u00f3.<\/span><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/p>\n<p><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">En esta de kermesse los familiares, pacientes, miembros del patronato, equipo operativo, voluntarios disfrutaron del grupo musical Envidia Norte\u00f1a quienes los pusieron a cantar y bailar hasta el cansancio, adem\u00e1s pudieron disfrutar de ricos platicos y postres realizados por las mismas familias y con ello recaudar fondos y mantener la operatividad de la organizaci\u00f3n.\u00a0<\/span><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/p>\n<p><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/p>\n<p><span data-contrast=\"auto\">La Asociaci\u00f3n Mexicana de la Enfermedad de Huntington (AMEH),\u00a0<\/span><b><span data-contrast=\"auto\">se fund\u00f3 en 1992 a trav\u00e9s de la inquietud de un grupo de familiares de pacientes afectados por la enfermedad de Huntington<\/span><\/b><span data-contrast=\"auto\">\u00a0y por profesionales de la salud del Instituto Nacional de Neurolog\u00eda y Neurocirug\u00eda \u201cManuel Velasco Su\u00e1rez\u201d.\u00a0\u00a0<\/span><span data-ccp-props=\"{&quot;335551550&quot;:6,&quot;335551620&quot;:6}\">\u00a0<\/span><\/p>\n<div id='gallery-1' class='gallery galleryid-3469 gallery-columns-3 gallery-size-large'><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-2.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"538\" src=\"https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-2-1024x538.jpg\" class=\"attachment-large size-large\" alt=\"Huntington\" srcset=\"https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-2-1024x538.jpg 1024w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-2-300x158.jpg 300w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-2-768x403.jpg 768w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-2.jpg 1200w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-3.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"538\" src=\"https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-3-1024x538.jpg\" class=\"attachment-large size-large\" alt=\"Huntington\" srcset=\"https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-3-1024x538.jpg 1024w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-3-300x158.jpg 300w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-3-768x403.jpg 768w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-3.jpg 1200w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"538\" src=\"https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-1024x538.jpg\" class=\"attachment-large size-large\" alt=\"Huntington\" srcset=\"https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-1024x538.jpg 1024w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-300x158.jpg 300w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington-768x403.jpg 768w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2026\/04\/Huntington.jpg 1200w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/a>\n\t\t\t<\/div><\/figure>\n\t\t<\/div>\n\n","protected":false},"excerpt":{"rendered":"<p>La Asociaci\u00f3n Mexicana de la Enfermedad de Huntington (AMEH) IAP trabaja desde 1992 para brindar atenci\u00f3n integral a pacientes y familias que enfrentan esta enfermedad neurodegenerativa.\u202f\u00a0 Eran las 11 de la ma\u00f1ana y el sol en su pleno esplendor hac\u00eda de las suyas, al mismo tiempo\u00a0el contrabajo, la guitarra el\u00e9ctrica, el tambor y el acorde\u00f3n [&hellip;]<\/p>\n","protected":false},"author":8,"featured_media":3471,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[911,4423,4539,4409],"class_list":["post-3469","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","tag-asociacion-mexicana-de-la-enfermedad-de-huntington","tag-fundacion-somos-hermanos","tag-huntington","tag-somos-hermanos"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Bailar contra el olvido: La lucha por hacer visible al Huntington - Historias que inspiran...<\/title>\n<meta name=\"description\" content=\"Se\u00f1al\u00f3 que la Asociaci\u00f3n Mexicana de la Enfermedad de Huntington IAP es la \u00fanica organizaci\u00f3n en M\u00e9xico que brinda\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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