{"id":2126,"date":"2025-11-11T05:43:32","date_gmt":"2025-11-11T11:43:32","guid":{"rendered":"https:\/\/somos-hermanos.mx\/?p=2126"},"modified":"2025-11-11T05:43:32","modified_gmt":"2025-11-11T11:43:32","slug":"desfilan-por-el-huntington","status":"publish","type":"post","link":"https:\/\/somos-hermanos.mx\/index.php\/2025\/11\/11\/desfilan-por-el-huntington\/","title":{"rendered":"Desfilan por el Huntington"},"content":{"rendered":"<p>Eran las 10:30 de la ma\u00f1ana y sobre Paseo de la Reforma en la Ciudad de M\u00e9xico y al tener como testigo al \u00c1ngel de la Independencia, se dieron cita, hombres, mujeres, ni\u00f1os, ni\u00f1as, familiares, amigos, patronato y equipo operativo de la <strong>Asociaci\u00f3n Mexicana de la Enfermedad de Huntington IAP<\/strong>\u00a0con la intenci\u00f3n de desfilar sobre un carril de dicha avenida y hacerse visibles.<\/p>\n<p>Sin importar las condiciones del clima, los usuarios de la asociaci\u00f3n marchaban echando gritos, porras haciendo uso de matracas, silbatos y panderos para llamar la atenci\u00f3n de quienes caminaban, corr\u00edan o andaban en sus bicicletas, y que al paso del contingente tomaban fotos, y preguntaban el motivo de esa caminata.<\/p>\n<p>Dicha caminata parti\u00f3 del \u00c1ngel de la independencia hasta llegar a avenida de los Insurgentes se torn\u00f3 de regreso al mismo punto de partida. Ah\u00ed, Donaj\u00ed Toledo Betanzos, directora de la Asociaci\u00f3n Mexicana de la Enfermedad de Huntington, explic\u00f3 que este padecimiento va alterando la capacidad cognitiva, se presentan alteraciones psiqui\u00e1tricas como: <strong>depresi\u00f3n, delirio, ansiedad, paranoia, y el s\u00edntoma m\u00e1s visible son los movimientos involuntarios,<\/strong>\u00a0se puede empezar con tics en cara y manos y al ser progresiva y en un lapso de 20 a\u00f1os, la persona termina completamente discapacitada.<\/p>\n<p>Por ello y en el marco conmemorativo de la enfermedad de Huntington que se celebra el 13 de noviembre se realiza un <strong>desfile de visibilizaci\u00f3n.<\/strong>\u00a0\u00a0\u201cNos damos cita un domingo previo a la fecha para poder caminar con todos los miembros de la organizaci\u00f3n, los beneficiarios, sus familias y el patronato. Es un desfile corto que va del \u00e1ngel de la independencia a insurgentes y de regreso. La intenci\u00f3n es darnos a conocer, que la gente vea a los pacientes y levantar la voz para que sepan que existimos, as\u00ed como la enfermedad.<\/p>\n<p>Toledo Betanzos inform\u00f3 que dicho desfile tuvo sus inicios en el a\u00f1o 2015 y que hasta el momento han tenido buena respuesta de las personas que los han buscado para sumarse como voluntarios o bien para hacer un donativo.<\/p>\n<p>A este desfile tambi\u00e9n se sumaron el Grupo Craack 9 Escuela de Adiestramiento Canino y Grupo Pastrana integrado por Enfermeras y Enfermeros que lideraron el desfile para que todo se mantuviera en estricto orden.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-2124 \" src=\"https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2025\/11\/hun2.jpeg\" alt=\"\" width=\"614\" height=\"461\" srcset=\"https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2025\/11\/hun2.jpeg 809w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2025\/11\/hun2-300x225.jpeg 300w, https:\/\/somos-hermanos.mx\/wp-content\/uploads\/2025\/11\/hun2-768x576.jpeg 768w\" sizes=\"auto, (max-width: 614px) 100vw, 614px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Eran las 10:30 de la ma\u00f1ana y sobre Paseo de la Reforma en la Ciudad de M\u00e9xico y al tener como testigo al \u00c1ngel de la Independencia, se dieron cita, hombres, mujeres, ni\u00f1os, ni\u00f1as, familiares, amigos, patronato y equipo operativo de la Asociaci\u00f3n Mexicana de la Enfermedad de Huntington IAP\u00a0con la intenci\u00f3n de desfilar sobre [&hellip;]<\/p>\n","protected":false},"author":8,"featured_media":2122,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[2156,2154,911,915,2158,2155,2157,1582],"class_list":["post-2126","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias","tag-alteraciones-psiquiatricas","tag-angel-de-la-independencia","tag-asociacion-mexicana-de-la-enfermedad-de-huntington","tag-capacidad-cognitiva","tag-desfile-de-visibilizacion","tag-donaji-toledo-betanzos","tag-enfermedad-de-huntington","tag-paseo-de-la-reforma"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - 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